top of page
Pose at Protest

Advocacy

Join us in our efforts to offer more resources for individuals with chronic kidney disease (CKD) and dietitians working in kidney care. We'll continue to add updates as they come up.

Kidney Policy & Advocacy Resources

The National Kidney Foundation (NKF) is a nonprofit organization located in NYC. It is the largest, most comprehensive, and longstanding patient-centric organization dedicated to the awareness, prevention and treatment of kidney disease in the United States.

The American Kidney Fund (AKF) is a nonprofit organization based out of Maryland. It provides comprehensive programs of kidney health awareness, education, and prevention, including financial assistance that helps 1 out of every 5 U.S. dialysis patients to access health care.

NephCure is a nonprofit organization headquartered in Pennsylvania. It empowers people with rare chronic kidney diseases to take charge of their health, while leading the revolution in research, new treatments, and care.

How can I make a difference?
Here are PRONA's recommendations:

 

  • Examine the statistics specific to your state and the state laws impacting living organ donation here.

 

 

 

  • Do you know who your lawmakers are? Find your lawmakers to learn who represents you in Congress and how you can contact them on kidney policy.

  • Are you located in Georgia, North Carolina or Texas? If so, consider donating your gently used household items and clothing. A portion of the proceeds from the sale of your used goods will be donated to the American Kidney Fund (AKF). Find out more!

  • Become an AKF Ambassador to make an important difference on Capitol Hill, in state legislatures and in your own community. You will learn the skills to fight for policies that improve kidney care, protect patients' access to care and increase funding for kidney research. 

  • Check out all the AKF current campaigns and take action by telling Congress why they should care about kidney disease. *This takes <2 minutes to make a BIG impact using AKF's prewritten messages and talking points sent directly to your representatives!

  • Discover all the AKF Policy Resources, including state factsheets, specific state laws around donation, and issue commentary.

  • The AKF is fighting for health equity in kidney disease. Watch a recent webinar on the topic and see how they are working to improve access for all. 

  • Consider using AKF's Kidney Kitchen Pro™, a centralized digital resource specifically for dietitians who work with people who have, or are at risk for, kidney disease. On Kidney Kitchen Pro, dietitians can access and share valuable resources, create custom meal plans and build custom toolkits to help people living with kidney disease better manage their health through nutrition.

  • Join the NephCure Action Network (NCAN), a movement of patients with rare kidney disease and their caregivers, physicians, and partner organizations who all have one goal: to save kidneys and save lives through lasting legislative and policy improvements.

  • Check out NephCure's Action Center, where you can find your legislatures and take action on current Senate and House action alerts. 

bottom of page